How to get involved
There are various ways that you can be involved. The patient groups are listed below under Hospitals, Public Partnership Forum and Managed Clinical Networks. There are also working groups and committees that seek patients, carers and members of the public from time to time.
You can also register on our new participation database to receive information and get involved in health issues that you are interested in click here to go to the participation database. The database also allows you to register if you would be interested in volunteering.
To find out more about the work of our Patients Councils/Networks based in our hospitals and how you can become involved please contact the following:
- Family Council at the Royal Hospital for Sick Children
- Contact Denise Claxton at the Royal Hospital for Sick Children, 9 Sciennes Road, Edinburgh, EH9 1LF.
- Email firstname.lastname@example.org or telephone 0131 536 0068.
- Patient Council St John’s Hospital
- Patient and Public Partnership Network(for Royal Infirmary of Edinburgh, Western General Hospital, Liberton Hospital Princess Alexandra Eye Pavilion and the Royal Victoria Hospital)
- Contact Pat Straw at Royal Infirmary of Edinburgh, 51 Little France Crescent, Old Dalkeith Road, Edinburgh EH16 4SA.
- Email email@example.com or telephone 0131 242 3385.
- Royal Edinburgh Hospital Patients Council— independently run collective advocacy organisation for patients and former patients of the Royal Edinburgh Hospital. Enabling patients to have their say about mental health services at the Royal Edinburgh Hospital the Patients Council provide a forum for common issues around mental health treatment and care. www.patientscouncilreh.org.uk Telephone- 0131 537 6462 email: firstname.lastname@example.org
Public Partnership Forum (PPF)
Primary care and community services are based in Community Health Partnerships (CHPs). They are in the City of Edinburgh, East Lothian and Midlothian. In West Lothian it is called a Community Health and Care Partnership (CHCP).
To get involved in how services are delivered and planned in CHPs and the CHCP join the Public Partnership Forum (PPF) in your area.
Voluntary organisations, community groups as well as individuals can be members of the PPF. To find out more about the PPFs and how to become a member, please contact the following patient involvement workers in your area. Within Edinburgh there are two PPFs - North Edinburgh PPF and South Edinburgh PPF.
Managed Clinical Networks (MCN)
There are also Managed Clinical Networks (MCN) in Lothian which are listed below. A Managed Clinical Network is a network of a variety of health staff (including doctors, pharmacists, nurses, health visitors, physiotherapists and occupational therapists) and organisations from primary, secondary and regional health care working together to make sure that high quality clinically effective services are fairly distributed. Involving patients with experience of the particular illness is an important part of MCNs development. A number have patient groups, while some have patients on groups working with staff.
Other ways to be involved
We also ask people to complete questionnaires, attend focus groups or workshops to tell us what they think of a particular service. As a current or former patient or a carer you may be contacted directly by the service you have used for your views on your experience.