Paediatric Palliative Care

Paediatric palliative care in Lothian is offered in both acute and community settings and is based in the Royal Hospital for Sick Children, Edinburgh.

The aims of Paediatric Palliative Care are to:

  • provide family-centred care in both community and hospital settings for children with life-limiting/life threatening illness
  • offer support and advice for the child, family and staff
  • provide education for the child, parents/carers, family, schools and professionals in the community, hospital and voluntary sectors
  • co-ordinate care between home, clinic, hospital and respite/residential services, liaising with fellow professionals as appropriate
  • provide specific advice on and treatment of pain and symptoms
  • assist with care of the child at home or in hospital in the terminal stages of their illness in collaboration with the family, the multidisciplinary team and primary care
  • provide bereavement support for family members and fellow professionals
  • provide an evidence-based resource centre for paediatric palliative care

Specialist Paediatric Palliative Care Services

Pain Management Service: Royal Hospital for Sick Children
Available 0900-1900hrs, Monday-Friday.  Saturday 0800-1400hrs.
Contact: switchboard 0131 536 1000 (bleep 9240)
 
Paediatric Oncology Outreach Nurses: Royal Hospital for Sick Children
Available 0900-1700hrs, Monday-Friday
Contact: (direct line) 0131 536 0427 or (switchboard) 0131 536 1000 (bleep 9270)
 
Paediatric Palliative Care Community Nurse: Royal Hospital for Sick Children
Available 0900-1700hrs, Monday-Friday
Contact: (direct line) 0131 536 0277 or (switchboard) 0131 536 1000 (bleep  9217)
 
Adolescent Oncology Nurse Specialist: Western General Hospital
Available 0800-1600hrs, Monday-Friday
Contact: 0131 5367 2974 (direct line/answering machine)
 
Hospital Chaplain: Royal Hospital for Sick Children
Contact: (direct line) 0131 536 0144 or (switchboard) 0131 536 1000 to radiopage on-call chaplain
 
Paediatric Pharmacy Service
Available 0900-1700hrs, Monday-Friday
Contact: switchboard 0131 536 1000

Out of Hours Advice

Pain/symptom management 
Contact: Royal Hospital for Sick Children (switchboard) 0131 536 1000; ask for ward 2
 
Paediatric Oncology and Haematology Service
Contact: (switchboard) 0131 536 1000 and ask for haematology/oncology specialist registrar

Last Reviewed: 21/08/2012