Information & Resources

USEFUL LINKS

Please find below links to our CF newsletters:-
 
 

Peer Review- November 2014

The Scottish Adult CF service underwent Peer review in November 2014. This was a review of the service carried out by the CF Trust in partnership with the British Thoracic Society (BTS). The CF Trust reviews every CF service in the UK every 5 years.
 
To access the full Peer Review Report please follow this link:-
http://www.cysticfibrosis.org.uk/media/1572082/CC10-N-PR%20-%20Edinburgh%20adults%20V2.pdf
 
 

The CF Trust

Cystic Fibrosis Trust  http://www.cysticfibrosis.org.uk
 
The CF Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them.
Explore the website below to find out everything you need to know about the trust; from our core belief and why they are here.
 
 
Tel- 020 3795 1555
Write to us-
Cystic Fibrosis Trust
One Aldgate
Second floor
London
EC3N 1RE
 
 

The Butterfly Trust

 
The Butterfly Trust provides a variety of ‘support services in the community for people affected by Cystic Fibrosis.
 
They provide advice on the following:
 
  • Information and advice
  • Benefits and DLA
  • Housing
  • Employment
  • Access to financial support
  • Other specialist services
 

Tel- (0131) 445 5590
 

Know your genotype campaign- 2015

The CF Trust have launched a new website dedicated to helping you discover information that's unique to your genotype.
 
If you do not know your genotype then ask at your CF Centre at your next visit. If your genotype is already recorded, they will be able to tell you what it is. If it has not yet been identified, then they can arrange a test to find out.
 
The Cystic Fibrosis Trust will cover the costs of the test, so it won’t cost you or your CF centre a penny.
 
For more information visit:
http://www.genotypematters.org
 
 

Last Reviewed: 15/04/2016